Resources for Advocates

COVID-19 Resources for Advocates

This page is Justice in Aging’s clearinghouse for COVID-19 resources for advocates serving older adults. As the situation evolves, Justice in Aging will continue to gather and add trusted resources including new policy announcements, advocacy tips, and other actions you can take to ensure that the older adults you serve remain safe, healthy, and able to get what they need.

For the latest information from the Centers for Medicare and Medicaid Services, visit CMS’s COVID-19 page.

  • Care Rationing
  • Nursing Home Advocacy
  • Federal Advocacy
  • California Advocacy
  • Trainings and Other Resources

As states reopen and COVID-19 hospitalizations surge, some states are implementing illegal care rationing policies that are ageist, racist, and ableist. Justice in Aging is working with partners in various states to stop these policies and help states write policies that don’t discriminate.

General

Justice in Aging Letter to Massachusetts on Age Based Bias in their CSC, 2/11/2021

Letter to Health and Human Services Office of Civil Rights in Support of Regulations to Combat Discrimination on the Basis of Disability in Health Care Services, 2/11/2021

Factsheet: Examining How Crisis Standards of Care May Lead to Intersectional Medical Discrimination Against COVID-19 Patients, 2/10/2021

Factsheet: Combatting Discriminatory Crisis Standards of Care, 9/2020

Webinar Recording: Combatting Discrimination in Access to Medical Care During COVID-19, 9/16/2020

Webinar Slides: Combatting Discrimination in Access to Medical Care During COVID-19, 9/16/2020

Statement: Justice in Aging Rejects Ruthless, Utilitarian Policies that Devalue the Lives of Older Adults, 4/4/2020

Arizona

Complaint to the Office of Civil Rights U.S. Department of Health and Human Services Against the Arizona Department of Health Services for the state’s Crisis Standards of Care that discriminate on the basis of age and disability in allocating scarce medical resources, 7/17/2020

California

Justice in Aging and Partner Press Release on CA Crisis Care Guidelines, 06/10/2020

Justice in Aging and Partner Summary of CA Crisis Care Guidelines, 06/2020

Letter to California Health and Human Services Agency Regarding Crisis Care Guidelines, 4/22/2020

Letter to California Health and Human Services Agency Regarding Non-Discrimination Medical Treatment in COVID-19, 4/3/2020

California Guidance Relating to Non-Discrimination in Medical Treatment for Novel Coronavirus 2019 (COVID-19), 3/30/2020

Maryland

Letter to Maryland Governor Regarding the State’s Care Rationing Guidelines, 4/27/2020

Massachusetts

Letter to Massachusetts Attorney General re: Crisis Standards of Care, 6/8/2020

Letter to Massachusetts Health and Human Services Secretary re: Crisis Standards of Care, 06/05/2020

Letter to Massachusetts Governor Baker regarding the state’s discriminatory COVID-19 care planning guidance for hospitals, 4/14/2020

Oregon

Federal Civil Rights Complaint regarding Oregon’s Crisis Standard Guidance, 05/08/2020

Texas

Complaint to the U.S. Department of Health & Human Services Office for Civil Rights re Texas Memorial Hospital System’s “No Visitor” policy illegally discriminating against people with disabilities, 1/13/21

Complaint to the U.S. Department of Health & Human Services Office for Civil Rights re Texas Health and Human Services Commission’s emergency rules limiting hospital visitation constitute illegal disability discrimination, 11/23/20

Complaint to the Office for Civil Rights, U.S. Department of Health & Human Services, re the North Texas Mass Critical Care Guidelines that discriminate against adults and children with disabilities, older adults, individuals from communities of color, prisoners, and others with co-morbid conditions, 7/22/2020

Utah

Utah Crisis Standards of Care Guidelines, 11/12/2020

Justice in Aging and Partner Letter to OCR Director on Age Bias in Utah’s Crisis Standards, 9/02/2020

Justice in Aging and Partner Follow Up Letter to OCR Director on Age Bias in Utah’s Crisis Standards, 9/23/2020

Wisconsin

Letter to Wisconsin Department of Health Services regarding the state’s discriminatory COVID-19 ventilator allocation guidelines, 4/24/2020

Justice in Aging is pushing Congress to pass relief packages that will help older adults, who are most impacted by this pandemic, weather the crisis.

Summary: The American Rescue Plan: What's in it for older adults, 3/16/2021

Disability & Aging Advocates Letter Urging Congress to Include the COVID HCBS Relief Act of 2021 in the next COVID-19 Relief Package, 2/2/2021

The December 2020 COVID Relief & Omnibus Spending Bill: What Advocates for Older Adults Need to Know, 1/11/2021

Letter from Aging Advocates to Biden-Harris COVID-19 Advisory Board, 12/03/20

Fact Sheet: How the ACA is Helping the Older Adults Most Impacted by the COVID-19 Pandemic, 7/20

Justice in Aging Comments for Vaccine Allocation Framework, 9/4/2020

What Older Adults Need From Congress, 7/15/2020

Joint Letter to Congress on COVID-19 Language Access and Communications Concerns, 05/29/2020

Letter to Congressional Leadership from 192 Organizations on the Urgent Needs of Low-Income Older Adults During COVID-19, 4/30/2020

Urgent Needs of Low-Income Older Adults During COVID-19 Crisis, 4/16/20

Letter to the Department of Health and Human Services Asking Secretary Azar to Take Action to Remove Barriers and to Streamline Enrollment in Health Insurance Coverage, 4/9/2020

The “CARES Act:” What’s in It & What’s Missing, 3/31/2020

Justice in Aging Asks of Center for Medicare and Medicaid Services During COVID-19, 3/25/2020

Social Security Administration Response to COVID-19, 3/23/2020

Older Adults Advocates to Congress on COVID-19 Response, 3/18/2020

In California, we are working with state leaders to ensure that the state collects and releases demographic data on COVID-19 hospitalizations and deaths, and we succeeded in getting the state to rewrite its care rationing standards in ways that don’t discriminate on the basis of age and disability.

Vaccinations for Older Adults in CA: What We Know Now

Letter to the California COVID-19 Vaccine Drafting Guidelines Workgroup Proposing Changes to Priority Tiers Under Phase 1b, 12/29/2020

Letter to California Community Vaccine Advisory Committee Chairs re: Prioritizing Older Adults and People with Disabilities, 12/07/20

Justice in Aging and Partner Press Release on CA Hospital Support Person Policies, 08/27/2020

Primer: Medicare and People Leaving Incarceration, 08/2020

Letter to the Los Angeles Homeless Services Authority (LAHSA) Regarding the Policy of Denying Project Roomkey Services for Homeless Individuals with Disabilities, including Those who Need Help with Activities of Daily Living, 08/3/2020

Letter to California Department of Public Health re: Data in Congregate Settings, 06/29/2020

Justice in Aging and Partner Press Release on CA Crisis Care Guidelines, 06/10/2020

Justice in Aging and Partner Summary of CA Crisis Care Guidelines, 06/2020

Budget May Revision: Statement and Analysis Calling on the Legislature to Reject Major Cuts to the Programs that Serve Older Adults

Letter to Governor Newsom Opposing Health Care Providers’ Request for Complete Immunity from Responsibility for Negligent Health Care, 4/23/2020

Letter to California Health and Human Services Agency Regarding Crisis Care Guidelines, 4/22/2020

Letter to California Health and Human Services Agency Regarding Non-Discrimination Medical Treatment in COVID-19, 4/3/2020

California Guidance Relating to Non-Discrimination in Medical Treatment for Novel Coronavirus 2019 (COVID-19), 3/30/2020

California Medicare-Medicaid Plan Flexibilities Related to COVID-19, 3/20/20

Letter to Governor Gavin Newsom on Actions California Must Take, 3/19/2020

DHCS Redetermination Guidance, DHCS, 3/12/2020

State Health & Emergency Officials Encourage Individuals at Higher Risk of Severe Illness due to COVID-19 to Take Precautions, California Department of Public Health, 3/9/2020

DHCS COVID Response, California Department of Health Care Services, Updated regularly

Community Care Licensing Division: Provider Information Notices, CDSS

Justice in Aging and the National Center on Law & Elder Rights have created a number of timely trainings and resources to help advocates serve their older adult clients during the COVID-19 crisis.

8 Recommendations for Health Plans Serving Dually Eligible Individuals to Center Equity: An Overdue and Necessary Response to COVID-19, 9/30/2020

How the ACA is Helping Older Adults During COVID-19, 6/25/2020

COVID-19 Advocacy Toolkit for Older Adults, 5/6/2020

Practice Tip: New COVID-19 Medicare Enrollment Information, 05/2020

How States are Modifying HCBS Programs to Address COVID-19 Emergency, (information and frequently updated table)

Justice in Aging Statement on Opening Too Soon, 5/5/2020

Template Letter to Congress Asking for Inclusion of Low-Income Seniors in COVID-19 Response, 5/4/2020

Life at the Intersection: Older Adults Need a Response to Covid-19 Grounded in Equity, 3/27/2020

Legal Assistance & COVID-19, 3/18/2020

Justice in Aging Statement on the Need for Social Distancing, 3/13/2020

Justice in Aging Statement, 3/11/2020

Coronavirus Aid, Relief, and Economic Security Act Stimulus Payments – Recovery Rebates Q&A, The Arc

Supporting Communication with Patients who have COVID-19, Patient Provider Communication

Helpline for Older Adults in 8 Languages, National Asian Pacific Center on Aging

In Language Resources for Asian Americans and Asian American Pacific Islanders, Asian Pacific Islander American Health Forum, 3/16/2020

Identifying Vulnerable Older Adults and Legal Options for Increasing Their Protection During All-Hazards Emergencies, CDC, 2012

Advancing States Page with Federal Resources and State Materials Produced by Health Departments & Agencies, Advancing States, 3/12/2020

Webinar Trainings

CARES Economic Impact Payment, 5/1/2020 (Justice in Aging with Disability Rights California)

Medicare Coverage and COVID-19, 04/14/2020 (Download the PowerPoint)

New Policies Related to COVID-19 at SSA, 04/10/2020 (Download the PowerPoint)

Nursing Facilities and Assisted Living During the COVID-19 Emergency, 04/3/2020 (Download the Powerpoint, Read the Issue Brief)

Strategies for Providing Remote Legal Services to Older Adults, 3/25/2020

Legal Challenges in Emergencies: Helping Older Adults Facing Public Health Emergencies & the Aftermath of Natural Disasters, 3/19/2020

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