This issue brief examines the privacy and discrimination concerns of low-income older adults in managed care, particularly those who rely on health aides and other providers for their most intimate needs.
This issue brief equips New Jersey's aging and disability advocates with information to ensure ongoing compliance and implementation of the Medicaid Home and Community-Based Services (HCBS) Settings Rule.
Most aging adults and adults with disabilities will require assistance to remain living in their homes and communities at some point over their lifetime. While many Californians report their long-term care needs are unmet, there are inequities in who has access to that care today. As California continues to make investments in its long-term care […]
Nursing facility residents for decades have been medicated with antipsychotics and other psychotropics in order to sedate them and make them more easily managed. But these medications can impair quality of life and increase the risk of death. Reform initiatives have had limited success. Notably, even reform initiatives virtually ignore residents’ decision-making rights, assuming implicitly […]
Most aging adults and adults with disabilities will require assistance to remain living in their homes and communities at some point over their lifetime. However, who is able to get these services is highly dependent on factors like race, ethnicity, age, disability, language, and others. This Equity Framework for Evaluating California’s Medi-Cal Home and Community-Based […]
The Biden Administration and other policymakers are actively discussing nursing facility reform, motivated in part by the death and isolation residents suffered during the COVID pandemic. Many of these reform proposals advocate for increased transparency and most focus on making more information available for the purposes of choosing facilities. We believe that transparency proposals should […]
Recent years have seen an increased—and overdue—focus on structural racism within the United States. The focus on “structural” racism—as compared to legal or explicit racism, for example—responds to ongoing disparities that statistically tend to favor white Americans over people of color and specifically over Black Americans. Like any American institution, the U.S. system of long-term […]
The Supplemental Security Income (SSI) program is vital for extremely low-income people who cannot work due to age or disability. The maximum federal benefit is just $841 a month for an individual, which is supposed to cover rent, utilities, food, and other basic needs. Not only is the monthly benefit too low, but there are […]
Many aging adults and people with disabilities will need support and assistance throughout their lifetimes. Medicaid (or Medi-Cal in California) is an important payer for these services provided in the home, called home and community-based services or HCBS. Absent Medicaid, people generally do not have access to these services unless they are able to pay […]
